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Post by cheshire on Nov 10, 2005 11:46:43 GMT
Hi again, When you wrote this and I read it I thought, this is almost my experience exactly [glow=red,2,300]Just wanted to add a couple of things about my own experiences, Firstly Hopeful, my PNI has been so much worse with B3 than B2?? It was the physical symptoms i noticed first, panic attacks, breathlessness, fuzzy head, chronic back pain and throat/neck problems[/glow]. In fact I had some breathing problems before the birth which were not to do with the baby's position. I had to have a heart scan, ECG etc. in A and E. I also had this with my first during the same week of pregnancy, but like you I did not have the severe physical symptoms the first time around. I mean, my husband and my family thought I had PNI mildly with my first, but I didn't feel that this was the case as I could work and still enjoy life, but maybe I did which would mean I've possibly had it 5 years and because I never properly recovered, maybe that is why I got it worse second time around...oops overanalysing again LOL I just found the physical symptoms so overwhelming and yet so few people actually associate this with PNI For anyone else reading this who still has these symptoms - they do go, I promisexx Talk about it here if you need to, we understand what you're going through.x
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Post by monica on Nov 10, 2005 12:50:26 GMT
Hi
That's me too! I had physical symptoms before any of the emotional typically associated with PNI. I had the pressure round my right eye, headaches, feeling spaced out as if I was deep inside my self, neck throat probs, worsened vision/double vision fo things at a distance, soemthing different about my vision , fuzzy head. These things freaked me so much, I became obsessed with my health (or maybe it would have happened anyway), then got the crying, depression, panic attackks agrophobia)
Antids have helped loads, as did acupuncture, exercise, goin back to work (but only when I felt ready).
None of the leaflets, drs, health visitors knew about the physical probs you can get with PNI. It was only when I started visiting this site, that I realised that many women suffer similar probs.
Hoep this helps someone.
Monica
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Post by cheshire on Nov 10, 2005 13:28:05 GMT
Hi Monica
Exactly! I had the physical symptoms first before emotional problems..in fact the very first thing was muzzy head and then I had a problem swallowing, like a lump in thr throat. Then breathlessness - prolonged panic I think Fran called it..and strange headaches and pain around sort of my eye sockets and across my chest....and my vision was affected. etc. It was only when I put my symptoms into a search engine that the APNI site came up and I was in tears by the time I'd finished reading their list of symptoms...then I found here (YAY!) I can honestly say I had no idea what PNI was. My mother only told me she had it only when I was diagnosed this time..she doesn't like to worry people!. In fact my mother and I have alot more in common regarding life experiences than I ever knew about until recently. There are some positives to come out of PNI.
Hx
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Post by sarajay28 on Nov 11, 2005 9:01:45 GMT
Hi All,
Isn't it funny how something we have/are all experiencing isn't recognised as symptoms of PNI?? Wonder why this is? Maybe we should all print out this thread and pass it onto to the HV's/GP's that have been treating us? lol.
Good to hear your positives Hopeful, i too have become alot closer to my mum and my sister since this awful illness started, which i too am so grateful for, so like you say it DOES have some positives too, hard though it may be to accept.
Love and Hugs to all
Sarah.xxxx
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Post by cheshire on Nov 13, 2005 15:38:48 GMT
Maybe this and the 'dreaded thoughts' thread is the start of that leaflet we were hoping to produce for GPs and other professionals we come into contact with?
Or perhaps we could start a 'leaflet' thread where we could state (maybe 50/100 word limit?) what our first and most siginificant features/ symptoms were when we knew we were ill?
Veritee, what do you think?
Hopefulx
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Post by cheshire on Nov 13, 2005 18:14:40 GMT
p.s. I would be happy to draft something and send it to you Veritee, if we did such a thread?
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Post by sarajay28 on Nov 13, 2005 19:09:24 GMT
Hopeful, That sounds a brilliant idea, i'd be happy to put something into the thread about my symptoms. It would help alot more people to understand that its not just something you can 'pull yourself together' about!
Well done you for having such a good idea.
Loadsa love
Sarah.xxx
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Post by angel on Nov 14, 2005 7:56:25 GMT
I agree i think that there really does need to be more information out there and i'd be willing to help in anyway possible.
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Post by cinders on Nov 14, 2005 10:36:46 GMT
Brilliant idea Hopeful, We definately need to get the symptoms out there and I would also be willing to help in anyway I can...just let me know. Get copies to our doctors and health centres etc in the hope of educating the ' professionals' and also the people who suffer with this illness and think that they're the only ones with certain symptoms. Count me in...Love n hugs Cinders xxx
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Post by Veritee on Nov 14, 2005 10:43:17 GMT
Yes Please
great idea
If anyone has anything that would like included in such leaflets please draft something and send it to me and I can put it together in the 'style' of the forum and site and add a bit myself.
Perhaps we need 2 or even 3
ie symptoms - general ie like the main list on the site
and Physical and Thoughts
send me anything you have and I'll start
ATB
Veritee
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Post by cheshire on Nov 14, 2005 11:10:46 GMT
Yes, that sounds like a great way forward. I'll look back at some of my posts and merge them and make the list more succinct...and then send to you. And I agree, symptoms can vary, so including as wide a range as possible is a good idea - as you say, this may lead to more than one leaflet...
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Post by francoise on Nov 14, 2005 13:13:13 GMT
hi hopeful
you say they go but im still waiting , i fele like shit and my eyes are so bad and my chest hurts and one of our docs died on sunday which has shocked me so much and upset me , im sorry , just feeling bad and sick as usual
fran xxxxxxxxxxxxx
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Post by cheshire on Nov 14, 2005 13:57:51 GMT
Hi Francoise,
Sorry you are feeling bad..I know what you mean -sometimes I believe they have gone - a couple of weeks ago I thought this was happening...but at the moment, they're back and I'm definitely not feeling my best..
Thinking of you Hopefulx
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Post by francoise on Dec 16, 2005 17:53:21 GMT
my doctor was saying yesterday that its so exhausting having bad thoughts that it wears your mind out and your body becuaee it causes tension , she said thats why i have a real bad back again
fran xx
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Post by fran on Jan 15, 2006 10:15:06 GMT
Dear Fran it is so refreshing to know that the physical symptoms of PND can manifest themselves beefore depression as that is the catergory I fit into.I have been suffering really badly with lack of sleep now for almost 5 months and the anxious feelings tightness in the chest llump in the throat come and go depending on how much sleep i have had.But it is the continuous thinking about it and worrying that you are the only one and that you will never be normal again that really takes its toll as your doctor said.Inability to go to sleep or waking up loads in the night is my main symptom though does anyone else suffer badly with this?
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