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Post by bam02 on Nov 27, 2005 21:23:26 GMT
Without anti-depressants I doubt i would be here too and definitely not without blood products, antibiotics, asthma drugs!!!!
They all help and all have there place, but people have told me not to take anti-d's in the past (not doctors), but they are a life saver and i am certain other pyschiatric drugs are too.
Its what works for you! I am glad they work for you.
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Post by natalie on Nov 27, 2005 21:26:15 GMT
Dear Bam
I'm gald its all working out for you too.
Natalie
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Post by Veritee on Nov 27, 2005 21:27:22 GMT
I have just had the thought that all my attempts on this thread to support have led often to me saying something that is not seen as supportive. My intentions are really honest and I am always willing to learn if what i say is not appropriate to PP or even PNI, i am always willing to learn ans change - But one of the reasons I confided my fear was that I was concerned that you felt alone Natalie and now Kate has said this too. I want to help and support you or anyone with PP and until this thread I had not seen PP as being an entirely different illness from PNI - as I saw PNI as encompassing all post natal illnesses such as PP Baby Blues, PND, OCD, PTSD whatever we get that is caused entirely from the fact we have carried and given birth and now have a child to care for . But I now from what has happened here I am not so sure I have consistently failed to say anything that is of comfort or anything that both you and Kate feel is supportive to you although I have really tried ..... So perhaps PP is very different from PP and therefore women who like me with or had PNI can not understand or offer you any support ?? I can not see that this is the case as I have found people very supportive who have not had either or ever had any mental illness at all and even though I am willing to accept that my disorganized thinking and hallucinations were not PP it seems to me that we experience many things the same . But I do wonder if you think with PP that this is the case - that my experience distressing as it was for me is so far from what you went though I can not support women with PP in any way What do you feel? If it is I will stay out of this section altogether in the future.I did not as I really did not feel our experiences were that different and thought i could support you both and encourage others with PP to come on the forum and use it. I know that there must be others out there with PP or recovering from it who may need support - I guess we have not yet done the right things to help women with PP feel safe here or to tell them about the forum and this section??? Perhaps you have some ideas for this ? You could write teh text for a leaflet that I could put together we could distribute about PP, the symptoms and what to do if PP is suspected . and I was also thinking that I could do a whole web page on PP on the main site and you and Kate could write the words
i.e what the symptoms are, what to do in an emergency situation , how partners and relatives can help, what treatment and medication is offered , what helps PP what does not, even what medication is usually offered and what the side effects are - I could ask my GP friend who advises this site about this -an danythign else you feel is ralavent as you have gone though PP But let me know what you think as I will do what you feel is best ATB Veritee
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Post by natalie on Nov 27, 2005 21:49:48 GMT
I think the fact that you only 'just' came out with the fact that you feel you had PP is the issue. In trying to help, you seem to want to have experienced everything 'we' have been through. I nor Kate have ever said that our experiences were exactly the same, or indeed that PP is so much worse than PNI. Everyones experiences are unique and equally terrifying, whether mild or severe, its not what you would wish on your worst enemy. Its just when Kate and I speak, the hairs go up on the back of your neck, its like ' oh my god, thats exactly how I felt, thats what happened to me'. I appreciate you have had severe PNI, but to think you may have had PP? Its not something you may have - you have it full blown, encompasing, no doubt about it. If you recall my first ever post on this forum was Has anyone else had, or heard of Puerperal Psychosis. Surely if you had wanted to comfort me in feeling like an alien, you would have PM'd me! Take care - Natalie
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Post by cheshire on Nov 27, 2005 22:00:07 GMT
Hi
Is everyone ok here? You are welcome to PM me.
Take good care of yourselves xx
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Post by Veritee on Nov 27, 2005 23:16:33 GMT
I agree
I am not feeling OK about this and I think this whole thread has upset well I feel upset anyway so I am guessing others do to?? .
I am not sure why exactly but it is not supportive and all I want is the forum to be supportive
If I have upset anyone I am truly sorry
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Post by wendabell on Nov 28, 2005 5:27:37 GMT
natalie, kate, i think it would be benificial to have some women on here to support those with pp as it is an area i feel i caanot help/ feel helpless to help in as not been there myself. wendabell
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Post by Veritee on Nov 28, 2005 9:23:57 GMT
Perhaps the solution would be to have an ex sufferer of PP moderate this section
Would that help?
I am keen to find a solution as I do not want anyone to feel unsupported and I do not want anyone to be upset by anything I or the forum does. It is here to support people and to help t get through PNI or PP etc
I do get very upset and worried when things go wrong on here and it does the opposite. I know I do not always handle things right and if anything I have said or done has upset anyone - I am very sorry.
But shall we try to find a solution as PP is a very serious illness and there is no specific support forum that I can find for it and few forums that support people with PNI have even a section on PP.
So until there is specific support for it - shall we all work together to get this right and here at least?
My concern is that with a specific section with its own moderator I would be fearful that if not many used the section anyone using this only would become isolated because others without PP would not feel now that they could post in here.
But I think we all understand now that it is possible that we can not relate to what it feels like to suffer PP if we did not have it... even if like me you were scared that you did, this is not the same as being so ill that it cant fail to be noticed and hospitalization and medication is what happens to you – I hope that I have understood this properly, tell me if I have not?
And I think Natalie you mentioned yourself that you were concerned that giving PP in its own section might not be a good idea I assume because it might isolate you?
I gave it its own section as I thought that if the reason not many women who have been diagnosed with PP come on her it might be that when they read the posts in the other sections they do not feel that they can relate to what is said because PP is a different illness with different symptoms and issues.
So I thought that if that is so – and you will have to tell me here – that having PP in its own section might mean other with PP use it.
But that has not happened and I am worried that this has isolated you both further and events have shown that the support we have tried to give you both has not been helpful.?
Do you think therefore we should move this section back or should we try to recruit women recovered from PP to moderate this section?
I am sure this might be possible if I contact APNI or MAMA or other organizations that support women with PP that if I ask for a volunteer I might find someone?
Or would you like to be the moderator just for this section Natalie?
As I admit to being out of my depth here and should not have tried to support you both at all perhaps and a volunteer who suffered PP and who perhaps has experience of supporting women with PP through APNI might be the person to support on this section ?
What do you think?
But even if the decision was to leave this here then as you both say that now the PP has gone that you got PNI symptoms and that you Natalie are worried that you may hide PNI after you have a new baby rather than PP as you feel that it is not possible to hide PP.....
Then you have a lot in common with all of us regarding the general PNI part of your illness so you are welcome to use the main section for support in areas that you do feel that you have in common with women who got PNI only and not PP
- this way this section could be used for specifically PP questions and issues and hopefully we can find an ex sufferer of PP to support on this -
and for everything else anything you need to talk about more generally can be done in the other sections.
I am just thinking out loud here as I realize that not everyone can support everyone
– although I try as it is hard to find enough people to put enough time on here that have had PP and other aspects of PNI rather than the usual symptoms of PNI. I hope you understand what I mean.
For instance I have had one or two sufferers on here whose main symptom was that they self harmed and have very few other symptoms.
I found myself out of my depth with this as I have never self harmed and while I had self destructive thoughts and fantasies when ill I never really felt like actually doing it either and although I have tried to learn about it I found I could not support very well on this.
So I recruited someone who had the same experience when she had her babies ( that she self harmed badly but did not feel otherwise that she had PNI but that it was PNI as she had never self harmed before and once her babies were about 2 she stopped – so in that she felt she was ill and had this one big symptom and it was brought on by birth she had PNI, but could not relate to others on here with more varied symptoms and this was the same for thee other women who self harmed ( of course many self harm and it is one of a number of PNI symptoms)
However while this person was able to help out one or twice and in fact really helped me one night in the chat room.
But it is hard to keep someone supporting people when their knowledge and expertise is in one area of PNI only ..
So what I am saying in a roundabout way is I probably try too hard to fill-in the gaps when others on the forum do not feel they can support on an issue.
I have now Lent that this is not helpful and I am willing to do my best to get someone whose area is PP on here to help
What do you think?
All the best
Veritee
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kate
New Member
Posts: 7
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Post by kate on Nov 28, 2005 10:33:49 GMT
Can I make some comments without sounding totally destructive to this website, this is not my intention. I think, Vertiee, that you are trying too hard to cover everything on this web page, and whilst I appreciate that none of you are experts I think maybe there are som,e things you shouldnt touch UNLESS you are an expert, such as pp. Otherwise as you can see, the wrong thing gets said and this could potentially end in a dangerous situation. I am not sure writing a text on what to do if pp occurs would be beneficial as I knew that I was ill so quickly, and was so off the planet I wouldnt be able to sit and study a website. It was an URGENT situation, as most cases of pp are adn it really is a get the doctor NOW situation. I am slightly confused (as I think Natalie is) about your motives in this section. It is almost like you were trying to relate to us, which I am not critisising but I hope you can slightly understand our anger because until you've been there you really cant understand. You either have it or you dont, there is no half way house. I am not sure about what the best thing to do with this section, could Elaine not moderate it since she is the patron and she had pp? Wouldnt she be perfect? Also just a word of advice, women with pp cant concentrate and your replies are so long. Try to cut them down a bit. Again, not a critisism, i am just helping you to learn what pp is like.
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Post by Veritee on Nov 28, 2005 12:28:27 GMT
OK thats fine -
I appreciate your honesty about how you feel on this
So Rather than stressing anyone further ...
I'll ask Elaine but I know she is very busy but I will try, if not I will see if I can find anyone else with the experience of PP to come on this thread now and then
Yes of course I wanted to relate to you both as I do all women with PNI of any kind and I did think that much in my own experience did relate to yours.
But from what you say I was wrong and I accept this .
My motives are that I want this forum to support all women with Post Natal Illness of whatever variety.
I did not think that PP was something that we could not support as we never intend to support from a treatment or medical point of view.
just from the point of view of us all being women who have suffered the awful thing of having the joy we could have had from giving birth and being a mother...
Was pretty much wiped out by some sort of Post Natal Illness
We share this whatever type of PNI we have..
I agree I am too wordy especially when I feel I do not want to be misunderstood I then try to include every aspect of what I am trying to say
But I think it is obviously better if I now leave this thread up to women with PP
and I will try my best to get a moderator who has had PP
I am however not willing to leave this major type of PNI out of the forum now that we have included it and started a dialog.
But I will in future leave this section up to those who have suffered to support each other.
And if you think that a section on this forum can not do this then it is up to you if you use it or not.
I think that this is all we can do for now - I will let you know if Elaine will come on this section
All the best
Veritee
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Post by natalie on Nov 28, 2005 23:05:26 GMT
Dear Veritee and Girls
Thank you for your continued support on this. I do think that this section should carry on, and I do really appreciate the support from other forum users. Some say they dont understand, but are hear to listen, which is fine.
I really would be out of my depth talking about IT's for example. I'm pretty sure I had them, but rather than just thinking things I acted on them straight away as I had no control over my mind at that time.
As this section was started by myself, I will be hanging around, but I do feel that to be a moderator is a huge responsibility and I am not ready for that, nor could I commit with juggling work and family also.
I am here to share my experience with other PP sufferers and really anyone who has a sypathetic ear. I want women who come here for support to know I have recovered from my episode, but I am very raw still from that terrible time.
I am also a good listener and am sure I dont know the half of PNI.
Take care and thanks again for the support all
Natalie
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Post by cheshire on Nov 28, 2005 23:11:01 GMT
Hi Natalie
Glad you're here with us. We're lucky Hopefulx
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Post by natalie on Nov 28, 2005 23:13:11 GMT
Hi Hopeful
As always thanks
Natalie x
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Post by Veritee on Nov 29, 2005 10:18:31 GMT
Hi Natalie
Me too, I just replied to your PM but had not read this section first.
It is all a learning curve for everyone on here and especially for me .
I am glad that you will stay with us and while I have talked to Elaine and will try to see if she can not be here regularly that someone else who understands PP can now and agian..
I am glad you will join in with us all also as I do think we share as much as we don't
ATB
Veritee
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Post by wendabell on Nov 30, 2005 5:41:25 GMT
glad your staying too natalie.
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