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Post by EC on Jun 26, 2018 15:37:00 GMT
Thank you for your support. It's been such a huge relief finding this forum. I really felt so confused and anxious before worrying that no one could tell me why I felt so rubbish. How long did it take you to complete recover from physical symptoms? I have suffered from anxiety in the past and never felt physical symptoms. I don't understand why my body has reacted in this way x
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Post by leanneh on Jun 26, 2018 22:53:25 GMT
Patience is one of the hardest parts of the recovery! One thing that I used to find really helped me was googling things and reading books and articles on PND whenever I found I was struggling with the process and feeling frustrated by it. I used to google things constantly on thought processes, recovery, tips to help myself. That way I felt like I had some control over the situation and I felt like I was taking more tiny steps towards complete recovery. It certainly used to give my recovery focus. x
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Post by monica on Jun 27, 2018 21:34:22 GMT
For me once of meds most of thecsymptomsxwent within a couple of months but would reappear with pmt, tiredness and the anxiety turned into depression, massive lack of confidence , self esteem. It took a good two years before I would consider myself recovered and that was with antids.
Try to look st the whole picture - overall are you getting better? If so then that’s really positive x
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Post by EC on Aug 25, 2018 11:36:55 GMT
Last few days I've felt really off when walking. I have had bouts over last few months of milder symptoms, head pressure, slightly off vision but this just feels a bit worse. I have had times in between when I've felt normal so I try and remember I will feel normal again. It's just so frustrating feeling weird and not right in my head, especially as I don't feel particularly anxious or depressed. It worries me that I'm going to have to put up with periods of my life where I just feel not myself physically, a bit spaced out with strange vision. I don't understand what causes these symptoms and why they are reoccurring. I start to think maybe there is something wrong with me and I have an illness. It just doesn't make any sense. It would be so nice to feel normal again and not to have to put up with feeling strange every few weeks x
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Post by monica on Aug 27, 2018 9:17:47 GMT
Hi EC
Yes you will feel normal again and these good smells will get longer.
Having a blip after a prolonged better period is very tough - physically but especially emotionally. It can feel like you’re back to to thecstart and will never recover.
Do take it easy, get sleep eat well and try to factor in nice things for yourself because you deserve it. Even a nice bath can help relax you and get those feel good chemicals buzzing x
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Post by EC on Aug 27, 2018 14:57:32 GMT
Thank you for your reply. I had a stomach bug for 2 weeks and couldn't eat anything without going to the loo. Had stool sample which revealed nothing so then started to wonder whether it was a virus or PNI. My stomach has settled now thank goodness but it might have kicked off the symptoms again. I'm really trying to put everything into practice from cbt and at least now I know what these symptoms are, it's just so hard when the symptoms are there as a reminder of what a bad place I was in most of this year. X
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Post by monica on Aug 27, 2018 16:20:22 GMT
Poor you - whatever the cause having a bad stomach for two weeks is grim! Glad it’s better! Often though illness can trigger a return of symptoms and yes it’s an automatic reminder of being in a bad place. I promise you that this too will fade x
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Post by leanneh on Aug 29, 2018 20:49:07 GMT
For a long while I always felt worse when I was physically ill. I remember having a really good spell for months and then one evening feeling unwell and I just felt so low! It took me by surprise a bit! I know it can feel like you are being taunted by the good spells and sudden blips but do try to see the positive of having those good spells! It means that you are starting to see the light at the end of the tunnel. When you have those low spells just try to remember the good bits and force yourself to remember you will have them again. You don't know when - just tell yourself for all you know you will wake up the next morning feeling happier...that happy spell could be just one sleep away, could come that afternoon but it's coming. Focus on that and it will help make the hard times that bit easier xxx
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Post by EC on Aug 30, 2018 14:18:26 GMT
Thanks for your replies. I just start to feel better, more positive and then I see something that freaks me out about some awful condition called fomalgia (or something like that) then think I've got it. The anxiety starts all over again. X
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Post by EC on Sept 6, 2018 19:10:37 GMT
Hi Monica Did u say that u suffered with numb patches with PNI?Seemed to have developed one on the top of my left foot. Trying not to worry about it but keep thinking that it's some awful condition x
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Post by monica on Sept 7, 2018 9:57:56 GMT
Hi EC Yes I had numb patches which would appear in different places. I remember telling my gp about the one somewhere on my chin and she just said ‘ yes there’s a nerve there’ - she wasn’t concerned st all! Can you see your gp for reassurance? X
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Post by EC on Oct 4, 2018 14:41:06 GMT
Is it normal with this illness to have days when your head feels heavy. At certain times in the day it's like my brain is a few steps behind my vision or my head. It's really hard to describe but I know I just don't feel right but find it hard to explain how. I just feel like I don't know how I'm ever going to return to feeling normal? I have a few days when things are better and then I feel off again. Did u have this? X
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Post by monica on Oct 5, 2018 11:35:33 GMT
Hi EC
I do remember feeling like this - I was on meds too but even that didn’t completely eradicate these feelings. Unfortunately recovery can be slow. I found these feelings of lethargy , brain zap, fogginess could occur with pmt, feeling run down, stressed, tired or sometimes for no apparent reason.
How are you overall? Do you feel things are improving ? Sometimes you have to take a step back and look at the overall picture. I would say if you are then that’s a positive sign. If you’re not, or are feeling really down about it go to the Drs for reassurance. It’s worth getting blood count, thyroid for instance checked out . Do keep talking - it really is hard when you hit that wall x
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Post by EC on Oct 5, 2018 18:32:21 GMT
Thank you for replying Monica.i have a couple of weeks where I feel better and immedfeel more positive sand then I feel strange again for a couple of weeks. Sometimes the foggy head comes and goes at different points in the day. My mood is always dependent on how I'm physically feeling. I know that generally the symptoms weren't has severe as before and sometimes I think it's my focussing on them which makes them worse. But I'm sure this strange feeling of feeling like o could pass out has increased. I know ii need to patient and being back at work has been great although so busy trying to fit everything in. I huger frustrated as I'm exercising and doing yoga and had my bloods d thyroid checked when this all started a year ago and all was fine. I always thought I'd have another child but I don't know if I can go through this again. That make me very sad x
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Post by leanneh on Oct 5, 2018 20:41:25 GMT
It really is hard when you have a rough time after a good spell but try really hard to remember those good times and that they’re just around the corner.
When you are having a bad time just try and remind yourself that you have had moments of feeling good. Remind yourself what that feels like and that the feeling is just around the corner again. It may be a day, it may be a week but you’ll feel it again. If you go to sleep and feel awful remind yourself that you might wake up in the morning feeling ok again. It will help get you through the rubbish days.
With regards to another baby, try not to think about that at the moment. Concentrate on getting yourself better now and then if it’s right in the future it will happen. You will have so much more support next time around and things can be put in place to help. I spent the first year worrying about another baby and then relaxed. My lb is now 2 and a half and im definitely thinking about it in the next couple of years. I feel stronger now. I might not even get ill next time and plenty of people haven’t in subsequent pregnancies! I do know that if I do though that the perinatal mental health team will support me through the pregnancy and be there afterwards and I also have so many more skills myself to help me through it. Try not to think about it too much at the moment as you will know what feels right once you are feeling better xxx
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