Hi Tina
I am Veritee ( I founded this forum a few years ago after I had PNI myself)
I have not written to you before but I wanted to say hello and welcome you to the forum.
I believe from what you have written above that you are a mum of a daughter who has not long had a baby and you are worried about her - that she may have PNI?
And today I have been told that you are now further worried about the babies wellbeing?
Is this right? is this the situation?If so I want to say I know as a mother of an 18 year old daughter and a 27 year old foster daughter who has two sons herself, neither of whom live with me now - that it must be very worrying if you live some way away from your daughter and she is in distress - I believe your daughter lives 300 miles from you? My foster daughter lives in Sweden
This can be very difficult - is your daughter contacting you regularly and is distressed ..............but you feel that you can do very little from so far away? I have felt like this
This is very difficult, I have been in this situation myself to a degree with my foster daughter when she had her two sons although my own birth daughter has not yet had a baby - but I think I can understand how it feels and my heart goes out to you.
However all I can say is that unless you are actually able to be there physically with your daughter and support her practically by helping with her baby's care or helping with domestic chores so she can concentrate on her baby's needs ..........there is very little you can do from so far away except be there for her via the phone or the Internet, and listen to her concerns and suggest if she is really worried about her baby's health she contacts her GP, Health Visitor or NHS direct.
If you are really worried you could contact her GP, HV, or social services yourself
but please bare in mind before considering this that it could be that things are not as bleak as it seems and it may not be necessary for you to DO anything!
That all that is needed from you is your support, sympathy and a listening ear
When you are supporting someone from so far away it could be that the picture of your grandchild's health seems so worrying because your daughter is passing on perhaps her inexperience with babies and/or her panic due to PNI to you!!!
- this is more likely if your daughter does indeed have PNI as seems to be a possibility as you say she is being screened for PNI by her Health Visitor, but all new mothers do panic at times about their babies health even if they do not have PNI
I do not know if this is the case but I do know that apart from suggesting to your daughter that she contacts her GP or HV if she is worried about her baby's health - you can do no more than you are already by supporting her and being there for her to vent her worries.
And to reassure you it does sound like your grandchild is being seen and checked by medical professionals and I am sure if there was any real cause for concern about the baby, they would be aware of it.
I did want to say that none of us on here can advise you 'officially' about any medical problems either with your daughter or her baby as this is not
a medically based support service but an on-line self help and mutual support service/group run by sufferers and survivors of PNI, so we can not give you medical advice and can only suggest that medical professionals are consulted if you are worried
That being said we do have members on here that as well as being sufferers or survivors of PNI are also medically trained so you could post your concerns for your grandchild on the forum in either of the following sections:
veritee.proboards7.com/index.cgi?board=relativesveritee.proboards7.com/index.cgi?board=babiesIf you do some of our members who do have medical training
may be able to offer their opinion - but please note this will only be their opinion as it would be impossible for anyone to diagnose any medical situation without seeing the adult/child/baby concerned and even if medically trained none of us come on here as medical ( or any other ) medical professional.
We all use this forum from the point of view of being sufferers or survivors of PNI.Can I ask if it is not possible for you to visit your daughter and find out the situation for yourself ?
I understand 300 miles is a very long way and totally understand if this is not possible - I find travel difficult myself these day and have commitments at home that makes it impossible to stay anywhere away from home usually for more than a day or two -
But if you possibly could visit her for a few days it might reassure you and give you a chance to make sure your daughter and her baby are getting the medical help and personal support they need.
Otherwise all you can do - as all of us who are mothers of grown up children can do - is be there on the end of the phone if needed and try to remain calm and supportive.And I do know how difficult this can be, but often this is all they need as they will be aware that you can not actually do anything practical to help from so far away.
It can really help to let them know that you support them emotionally.Otherwise all I can suggest is you tell your daughter about this website and try to encourage her to at least read the main site here:
www.pni.org.uk or come on here and read what other mothers of new babies are going through - and if she can to join us and post on the forum.
If she will not read it for herself can you not print off anything that you think will help in the main site and on the forum and send it to your daughter?
Please get back to me if I can help further
Veritee XX