Newbie here - can PND return

[Jan]

Hi

I'm a sort of newbie - I can't remember if I posted before when I was first diagnosed.

I've just posted on the PNI thread veritee.proboards7.com/index.cgi?board=general&action=display&n=1&thread=1339

and (to save me retyping everything) would appreciate your feedback on whether it's possible for PND to return following treatment.

Thank you.

[yoyo]

Ooooooo I hope not!

I guess as PNI is so severe for many its possible - esp at times of stress/sickness/etc etc

[tj]

Hi,

I had pnd about five years ago now, I don't think it can return, I still have good days and bad days, mostly good until recently, you can read my thread "fed up", but I try and put things in to prospective, difficult sometimes, but is it just life!!

[Veritee]

Hi

I too do not think it can return - least not without having another baby

But you have to be sure you were actually over PNI first before you wonder if it had returned?

From what you say, I am afraid you actually have not had PNI that long - ie if the baby you got it with is only now 22 months?

This is not really very long - at least too short a time to be fully recovered - many have it for 3 to 5 years and some longer before they feel fully well, however they might spend the last couple of years feeling much better but still go up and down and especially around periods or during stressful times in their lives - and as many will tell you a holiday is one of the most stressful things you can do with PNI apart perhaps from moving house!

Therefore I think like everyone else is suggesting, you came off your medication far too soon and yes you should go back to your doctor.

So no I do not think PNI can return - but I do not think you have recovered from it.

I do not think even the doctors who prescribe it would say that Anti Ds are a cure for PNI, but they do mask or lessen the symptoms so that you can get on with your life, maybe have some therapy or counseling and perhaps built up your self esteem and your enjoyment of your new larger family, and having fun and feeling better about yourself may help shorten PNI.


From what you7 say, you were probably in a recovery period ie you were better but not yet fully well - and then before being fully better you both came off the medication and then shortly afterwords started doing things that were stressful like your first holiday which was not staying with relatives! That is a big thing

I am sure that all is needed is a little longer on the ADs or if you do not want to go back on them now you have stopped - perhaps push again for some support or counseling as Anne-Marie suggested

and to be very gentile with yourself - treat it like a long convalescence period as for any physical problem.
After my accident for instance I was in a frame for nearly 12 months but when it came off I was very well aware that this did not mean I was better.

I was very weak and felt quite unwell at times and it took me a further year to feel almost normal again.

Well PNI is like this really.
Also as tj mentioned - when you recover form PNI it is not always that you are then always able to cope and everything is fine - even I would have some stress if I went away to a hotel and it would be noting to do with PNI - just life.

So if you want to continue with ADs go back to your GP but otherwise try to get a little more support - I am always upset when I hear that planned groups are not followed through! Perhaps you should push abotu this if not for you but for those who may come after you.

All the best

Veritee