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Post by francoise on Jan 27, 2005 17:46:54 GMT
im 21 veritee i know im only a young thing but hey i had my 16 yrold some would say far to early
no im really um thirty um eight
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Babytales
Senior Member
Slipped back down again, but trying my best to find my way back
Posts: 207
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Post by Babytales on Jan 27, 2005 20:43:21 GMT
Lol@fran!! I'm 36. I agree with it being hormonal, definately. But as to the breathing difficulties, I've had asthma for most of my life, and it's always been due to allergies. However, the last few months it's been a lot more often and the doctor's checked my chest and there's nothing there - it seems to be more in my throat area. It makes me think of nervous asthma - it's triggered by nerves/stress etc. Maybe this is what the breathlessness some of us are experiencing? Just a thought.
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Post by Veritee on Jan 29, 2005 11:04:32 GMT
To banana
Hi you asked abut headaches on another thread and I thought I would answer here.
You say you have frequent headaches that paracetamol will not touch.
In my experience any headache that is like this can be classed as migraine - not all migraines have the classical symptoms of migraine such as sickness and vomiting, double or cut off vision, pins and needles in arms and needing a darkened room.
I found that the migraines I gotr with PNI were not like this but, a bit of sickness - but mostly blinding pain.
As to how to treat them I got little help from my doctor - who certainly did not know enough to link it with PNI .
So I found that as in all migraines I could sort of tell if I was about to get one, so for me I found the product 'migraleave' worked if I took the pink tablets as soon as I realised I was in for one or as soon as it came on. A friend of mine who only got them around her periods, but very badly. would take a maximum dose of Ibrubufen as soon as she knew she was in for it, followed by paracetomol half an hour later ( you can take these too together with no ill effects) but you can not take Ibrubufen f you are sensitive to aspirin or get really sick with the headaches.
The trick is to knock them on the head before they really get underway.
Feverfew herbal tablets also worked for me - again if I took this early on and homeopathic remedies help some people. I also found that Tiger balm and the more recent '4head' that you rub on your forehead did not cure but really relived the pain along with the other medication.
I have to say that headaches like these are common in PNI. Others who use the site still suffer them. AC I think gets them quite badly.
For me these headaches were the first inkling when I got home from hospital - that I had that made me think things were not all OK.
From about the 8th day after the birth and unfortunately till Caja was over a year old - I had headaches like these almost every day for six months and very frequently after this. But they did get less severe as time went on
It is these headaches that make me think that for me at least PNI has a hormonal link as I already suffered from migraines, which only started when in the month before I had my first period and always from then on got worse or more frequent and have almost totally gone since I reached menopause, but got worse in the first year of the menopause.
I realise that this is too long for anyone to wait!
So as well as trying the things above - have you been to your GP especially about these as their are some effective treatments now.
All the best
Veritee
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banana
Senior Member
The good days are back!!!
Posts: 361
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Post by banana on Jan 29, 2005 11:36:01 GMT
thank you veritee.
Got one at the moment and its killing my eyes typing on here so Im gonna scoot.
Banana x
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Post by Veritee on Jan 29, 2005 11:39:23 GMT
Forgot to reply about the oestrogen patches. No until I think you told me about the doctor who recommends oestrogen patches for PNI John Studd, DSc, MD, FRCOG, is Professor of Gynaecology ( see:http://www.gynaecology.co.uk/) I had only ever heard of using progesterone in the form of cyclogest pesseries or progesterone cream. Never oestrogen’s. The progesterone was first recommended by Katharina Dalton quite some years ago now See Deborah’s review about her book Depression After Childbirth Katharina Dalton. isbn: 0-19-263277-9. on my booklist at www.pni.org.uk/book.htm. see also the thread at : veritee.proboards7.com/index.cgi?board=general&action=display&n=1&thread=1104787525. I have made it stick to the top as I think it is important to gather evidence of symptoms and treatments I was in fact VERY surprised when I you told me about this doctor and I have since written to him telling who I am and what my interest is in different treatments for PNI and said I would be very interested in hearing about any research he may have done or his clinical experience in treating women with this method. He has not yet replied but it could be he did not understand what I was asking him. So many people I contact saying I run a web site - seem to jump to the conclusion I am just asking them for money and do not really take in what I am saying. I guess this is because doctors and companies get lots of spam from web sites that are asking for money. It may be he did not get my e mail or like the reactions I have had before from some medically trained people - did not feel that I had any right/reason to ask as I am not a health professional. but some write back politely with publicly available published information - I think this is wrong - I am not asking it for me but because I run this forum and therefore can pass info on to a lot of women who need to know what treatment is out there and if it has any validity. One he is not included in any list of current researchers into PNI treatments or hormone treatments and I can find no other perenatal 'expert' who thinks that oestrogen has any place in treating PNI. If you have a current e mail for him I would like to contact him again and I will also ask a few ‘experts’ who do e mail me back when I ask medical questions. All the best Veritee .
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Post by annag on Jan 29, 2005 12:15:21 GMT
Yes Veritee it was harley@studd.co.uk or is this the address you have. I thought maybe he might want to post on the site with his views on things could be mutually beneficial.
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Post by Veritee on Jan 29, 2005 12:37:33 GMT
Thanks Annag
No the email I had was profstudd@gynaecology.co.uk I got it from his web site.
So this could be the reason. I have written again asking him to come on the web site and do this and said he would be welcome.
I would actually really like professionals like him and those who do research to come on the forum and tell us directly about the treatments they offer and any research findings that may be of interest.
I think I will include this suggestion in a mailshot another forum member is helping with.
( I have also revised my above post to be more diplomatic incase he does - as whne I wrote it I just thought he had ignored my post as many do - and I have to admit I get annoyed at the number of times this happens - diplomacy is not reallly my thing)
Anyway
Thanks for the information, perhaps he will get back and tell us about his treatment and we may get feedback from others.
All the best
Veritee
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Post by annag on Jan 29, 2005 12:44:21 GMT
Also I contaced him through a different web site and it had his phone number on there as well it was www.studd.co.uk dont know if this helps.
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Post by francoise on Feb 1, 2005 15:00:39 GMT
hi everyone something that has been mentioned few times on here is eyesight , i noticed before i had the baby that everytime i got pms my eyesight would be worse and then after the birth it went alot worse so i am for the first time in my life wearing glasses for the past five months ,
ive also noticed aswell as im back to my agoraphobic state again that when i do go outside my eyes realy play up alot which i suppose is because they are not used to sunlight anymore ,im wondering though when we recover does our eyesight also recover too
francoise
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Post by annag on Feb 1, 2005 15:51:49 GMT
i always thought the vision thing was part of the panic. You know if your not breathing properly you get dizzy. I kept saying I had damaged my eyes with the sun but there was nothing wrong. It may just be a coincidence that you need glasses now.
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Post by francoise on Feb 1, 2005 16:38:42 GMT
yeah maybe but it is a wierd coincidence
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Post by cokey on Feb 1, 2005 16:50:23 GMT
Hi everyone
I am really glad I checked this thread because I was about to go to the GP about the headaches/migraines. I had horrendous migraines when I was pregnant and I also had them in my early 20s and so I know they are hormonally linked. However, I have had them bad since having PNi too. They have been really bad recently. I also had my eyes checked (I normally have really good eyesight) because I often have blurred vision since having my baby but the optician said it was a hormonal problem that would sort itself out in time and my eyes were perfect.
I guess we just have to be patient but it is such a nuisance and yes I have the chest pains and skipped heartbeats too. I also get loads of bruises on mylegs ariund the time of my period. I was checked for leukaemia (mainly because I had convinced mys elf I had it) but I had no blood disorders or anaemia.
Cokey xxx
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Babytales
Senior Member
Slipped back down again, but trying my best to find my way back
Posts: 207
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Post by Babytales on Feb 2, 2005 11:00:54 GMT
I typed out a list of symptoms to take to my specialist yesterday and thought I'd paste it in here. He said that he didn't think any of them needed further investigation as they were all related to my depression:
Excessive tiredness/exhausted.
Can sleep for ages but still feel tired. Also can have insomnia when tired
Can’t get out of bed, even when the baby shouting that she needs feeding – I wake and nod off again, it can take up to 30 mins or more to get up.
Yawn nearly constantly on some days.
Light headed.
Eyes feel strained/tired – hard/slow to focus.
Always want to lie down.
Very forgetful
Headaches, some very bad.
Sinus pains.
Breathless.
Sore throat
Feel sick/nauseous.
Feel as if I’m getting a cold quite often.
Backache.
Pain in my ribs on left side – has been there since the end of the pregnancy. For a while after having the baby it felt like something was popping out when I’d pick her up.
Cramp in legs
Irritable bowel.
Knees click a lot and sometimes feel like they’re going to bend the wrong way. If I do too much when they’re like this I’ll be in a lot of pain in my knees for a couple of days afterwards, but there will be no swelling or redness. They’ll feel as if they’re hot, but will be normal temperature to the touch.
I used to have the symptoms over a week or two, then have up to a week of feeling really good, but now I don’t think I’ve had a ‘good’ day in quite a long time. There’s just different levels of being ill.
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Post by francoise on Feb 2, 2005 12:09:07 GMT
thats the same as my list altho sweating isnt on there n the pain in the ribs both sides and armpits it spreads tp but i dont get loads of headaches or cramps but its way close tho hun well done tho for taking the time to list it all ..good thinking love fran
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Post by francoise on Feb 2, 2005 12:57:36 GMT
oh yeah sometimes numb hands and feet and the nhs nurse said yesterday that is due to the shallow breathing we do and its the lower levels of oxygen in our blood that make our hands and feet go numb sometimes or our faces to , she said loads and im trying to remember all what she said now
love fran
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