|
Post by cheshire on Jan 15, 2006 13:04:28 GMT
Hi
I hope you don't mind me answering briefly as I know this is addressed to Fran.
Yes, I suffered these symptoms too and found it really scarey. I think when I knew that others had experienced the same, it helped me not to worry as much.
I no longer suffer these symptoms -although have to be careful not to 'overdo' it still. At the time, I just didn't believe that this day would come, but it did.
Hopefulxxx
|
|
|
Post by clairedare on Jan 15, 2006 13:50:34 GMT
Thanks for replying.I am not quite sure how this whole web site thing works.Anmyway it is really great to know that somebody else has walked in my shoes and is out the other side.Could you tell me more about your road to recovery please.
|
|
|
Post by cheshire on Jan 15, 2006 14:03:47 GMT
Hi
Yes, I will. I'll have a go at this this afternoon! There is also a 'road to recovery' section on the board which might help...
You're not alone in how you're feeling and in what you're experiencing, I promise
Hopefulxx
|
|
|
Post by cheshire on Jan 15, 2006 15:17:55 GMT
Hi again, I know the others will add more too, but just for starters: My Symptoms (probably missed some)Headaches Eye ache (around the socket) Fuzzy head Severe breathlessness and panic attacks Severe Insomnia Numb patches on arms and legs Blurred, sort of dizzy vision (didn't read much for while) Self harming Attempted suicide Very, very angry Obsession with death, hallucinated 4 times – grim reaper, bad witch and evil gremlins, baby dead in bed Feelings of being a bad mum/ everything my fault Morbid ‘what if’ thoughts around my ability to be mum, my children and husband’s health and welfare - although no real inclination to harm my son (thought I might do it unwittingly though e.g by letting go of pram or being in car accident) Phobias – loads of them More here on physical symptoms:veritee.proboards7.com/index.cgi?board=General&action=display&n=1&thread=4175&page=1YoYo’s thread is a really good account of recovery (YoYo had physical symptoms too):veritee.proboards7.com/index.cgi?board=Journal&action=display&n=1&thread=4909My RecoveryStarted when I found out what was wrong..searched on Internet and this site came up Cried as I read posts similar to mine and knew I was not dying Formal diagnosis from mental health team after I printed off my posts and lists of symptoms – they were concerned about hallucinations, but this was about 8-10 months on and these had stopped . Diagnosed with PNI Still had major sleeping problem. Eventually started psychotherapy (again!!) Had other issues that complicated my recovery which I actively sought to resolve Psychotherapist empowered me to tolerate, manage symptoms – and get some control back over anxiety by ‘making friends with the inner child’ There then came a day when I started to enjoy my children again, even if only for brief periods. I then found that I had an overwhelming urge to sleep – felt almost unconscious, no longer able to do night feeds well.I decided at this point to sleep at every opportunity. So I did and just met the needs of the kids and hubby. That’s all. It wasn’t a waste of time at all (which is what I originally feared) This might be a good point at which to visit my dairy……although I ramble about all sorts – but you’ll see there were blips and then the good days just keep comingveritee.proboards7.com/index.cgi?board=Journal&action=display&n=1&thread=4908Hope this helps Hopefulxx
|
|
|
Post by kirsty on Feb 14, 2006 1:40:59 GMT
hey every1 my sypmtons r realy bad head pain at the bak of my head feel quite week and tierd and my head cracks where the pain is im really concernd
|
|
|
Post by Veritee on Feb 14, 2006 9:40:09 GMT
Dear Kirsti
Have you fallen over or knocked yourself in anyway recently? Or been pushed suddenly or been in a car that stopped very suddenly making your head whip back and forward suddenly ( whiplash)
Or if not recently sometime before you first got a headache like this?
I am not a doctor but what you describe does not sound like PNI - but a neck injury.
I say this because a few years ago my daughter had a slight fall form a horse and she was shaken but did not seem injured.
But then the next day she had a headache exactly as you describe - with the clicking in the back of her head etc, the headache kept coming back and we were so concerned we eventually got her refereed to a pediatrician.
After a month still no explanation and it was even suggested that my daughter was putting it on - which she plainly was not , she had never before had a headache for more than an hour or so when she had a bug or something , yet now she was in so much pain she could not go to school most days .
Anyway, in the end I went on the Internet and started to guess this could be a neck injury form what I read as this kind of headache can be this and people can suffer years before they realize.
I asked a friend who was training to be a sports physiotherapist and she confirmed it so I put two and two together and remembered this slight fall from the horse.
So I took her to an osteopath.
I could not believe it she straight away said my daughter had a neck injury that had put the disks out - she manipulated her neck and Caja's headache went right then and there - we only had one follow up appointment
Caja had never had any more trouble.
I know this might not be your problem but I really think your symptoms are such that it needs investigating and if a doctor does not help that it would be worth checking your neck and back with an osteopath - it cost me £36 each session but it was money so well spent after months of Caja being in pain.
I know I have gone on but I have told you the whole story to explain why I think you should think about taking these steps .
It could end up that it is indeed a stress headache caused by PNI - but I always say that before accepting that anything is caused by PNI - have the physical symptoms properly investigated first
as you do not want to miss a physical cause and therefore suffer physically longer than you need - not everything is caused by PNI
When I was ill I put a very real sinus problem that was so bad it eventually needed an operation, down to PNI - so this meant I suffered badly for two years longer than I needed as i just assumed it was yet another symptom of PNI
So I would say if this headache is more than a one off - get it checked out and by an osteopath too if the GP come up with nothing
VeriteeXX
|
|
|
Post by Jef on Mar 15, 2006 9:35:44 GMT
its great to here all your stories but a little scary too. Ive been getting some physical symptoms but i didnt relate them to how i was feeling (still finding it hard to say i have pni, not sure if im just being dramatic!). I get the dizzy spells and blurred vision, shakes and lack of concentration. Ive also had alot of nausia and vomitting and a churning tummy.
I started feeling like this within a couple of weeks of Gjiana being born in november but its gotten much worse in last few weeks, is it going to carry on getting worse?
A couple of years ago i went through an amazingly stressful time and think i suffered with stress/depression for a little while but never dealt with it, could this be why ive got pni? Also we have alot of pressures and unsurities in our life at the moment and bf hasnt exactly been supportive, could all this be a factor? xx
|
|
|
Post by cheshire on Mar 15, 2006 12:45:33 GMT
Hi Jef The physical symptoms are so unpleasant aren't they? I had these - for me the symptoms started off quite suddenly and severely and became even more so, before they started to improve. By that point, I knew what illness I had and had found some support. Have you been diagnosed with PNI? Noone seems sure about what causes it - I persoanlly feel that hormones must play a part..but I guess any other stresses or traumas in life won't help either. Welcome to the Forum anyway I personally found the symptoms much less frightening, once I'd ackowledged that PNI was the cause and also once I'd realised that others were experiencing the same - and also getting through it. It is amazing the range of symptoms, isn't it? Take Care HopefulXX
|
|
|
Post by francoise on Apr 2, 2006 10:12:41 GMT
it is hormones i think , alot of it anyway wendy , its like now im getting bits of it back , being pregnant has forced them out again , my head isnt to bad but the physical stuff is there again like before but coz i know its my hormones im kinda less worried abotu it alot , as i know they will subside again ,
hormone sensitivity my doc said , im not sure about that , i know my pain threshold has dropped since the begginning of pni so it may well be
fran xxxx
|
|
|
Post by cheshire on Apr 2, 2006 14:10:09 GMT
Hi Fran,
Hormone sensitivity mentioned to me too - some breathing problems during pregnancy with both..hospital visit both times, strange isn't it really? Had no idea what was going on at all for ages.
Sorry to hear the physical stuff is there again, but like you say hopefully helps if you know what it is?? Hope it does help x
Loads of love HopefulXX
|
|
|
Post by francoise on Apr 2, 2006 14:25:01 GMT
yeah it does help doesnt it, knowing we beat it before must do eh , yeah im quietly confident its just hormones screaming at me , im fine though hun , i can plod along till they go , sometimes when im tired and my breathing goes shit i get pissed off but then when i relax and think about it it eases abit
xxxx
|
|
|
Post by sixfootblonde on Apr 3, 2006 21:47:24 GMT
Fran, You mention your breathing - what happens? Thank you
|
|
sann
New Member
Posts: 11
|
Post by sann on Jul 10, 2006 11:24:26 GMT
Hi francoise
I have experienced the exact same symptoms. I wrote my story when I joined if you want to read it. The constant fear of not breathing and thinking you have something seriously wrong is the worst. I hope it gets better. I am not taking anti-depressants cause they made me feel worst after one tablet. I know I can get better if I could just feel healthy and stop these god awful panics!
Take care Sann x
|
|
|
Post by francoise on Dec 11, 2006 17:25:08 GMT
ahh the breathing thing , got that one back , funny thing is i thought i was ok when i was preggers but i was pregnant in april when i wrote these other posts here so obviously i did have stuff , must of been the last part i was ok , see totally forgetful too , anyway the breathing thing is so like a nervous deep feeling to i find , when im getting it now im really trying hard to define it properly , it is difficult as there arent certain words for many feelings , anyway im gonna keep this one up until i find some kind of answer to the fear i think , well try of course in my own way
fran xx
|
|
|
Post by francoise on Dec 13, 2006 14:37:27 GMT
sinus thing is back now , how wierd is that , didnt have atall for ages until now , h.v said my expectations at feeling good was to high , i felt quite patronised by that and felt like screaming saying i feel like god dam shit , nowhere normal , i dont want the world just wanna be normal and be able to do normal things , actually i did say that to her , i think she knew i was upset by her remark but shes so ace i still love her to bits , had her along time now and i just hoped she knew me better , sometimes i feel like such a fake with all this stuff but i try and be normal but just cant , heart keeps missing beats to , hate that , makes me scared its gonna stop altogether one day
francoise xxx
|
|