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Post by winegirl on Mar 29, 2007 20:21:00 GMT
Hi Hayley
Welcome to the site. 10 and a half months on I still have the fuzzy head but it does get better. Im sure that these symptoms are PNI related, but perhaps it would be worth seeing your gp just to rule out anything else. My GP gave me blood tests and all sorts and it was good just to make sure it wasn't anything else.
I hope you find the site useful, pls post anytime.
Winegirl x
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Post by winegirl on May 5, 2007 14:18:33 GMT
Having had a bad day again with Physical Symptoms I am bumping this thread up again to invite anyone else to talk about their expreiences. It really is an awful part of PNI, one that I personally have found far more distressing than the dark thoughts.
Hope no one minds me bumping this thread up?
Winegirl x
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Post by cheshire on May 5, 2007 15:03:20 GMT
Hi Winegirl Sorry you're having a hard day with it. Physical symptoms are awful - I so feel for you as I had them too. I hated the breathing problem in particular Hx
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Post by sare on May 5, 2007 20:37:47 GMT
Hi Winegirl,
My physical symptoms have been bad again for the last week or so and, like you, I find them much worse than the thoughts
Sare xx
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Post by JDM as guest on May 6, 2007 18:36:44 GMT
Hi Guys
For me the physical symptoms have been the worst bit for me for the last 3.5 years. I have suffered with:-
Dizziness Tinnitus Pains in neck and back Feeling faint Headaches Stomach pain/indigestion Pressure around my eyes and nose twitching feeling like I am choking tingling on my face and head feeling like my blood is pumping really hard around my body palpatations chest pains insomnia waking early feeling sick (like when pregnant) and there have been more, but the worse ones were the dizziness and panic attacks. I want to re-assure you that I have had these symptoms nearly every day for the last 3.5 years and I am still here to tell the tale! I know it is not much help when you are going through them because they are very real. I dont really engage with the medical profession any more but that is purely only my opinion, if it would help you should go along to your GP for reassurance and test etc.
Hope this reassures you a bit. Hope tonight is better asfor me the nights were always scary. Have you got anyone at home you can confide in who can be there for you to calm you down?
Take care, you are in my prayers tonight.
JDMxxxx ;D
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Post by winegirl on May 6, 2007 19:45:34 GMT
My Smptms have been going on for nearly a year now and they are as follows:
dizziness nausea panoc attacks can't breathe overwhelming tiredness headaches
I have also given up on the medical profession, although I do have an appt in three weeks with a mental health nurse as they think all these symptoms are anxiety related (I am not convinced)
I have to say JDM I am pretty freaked out that you have been suffering for 3.5 years with this! You have done so well to battle through. I wake up every morning praying it will all go away, not sure I could deal with another 2.5 years of it!
However will stay positive, it may all disappear in the morning!
Take Care
Winegirl x
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Post by sare on May 7, 2007 8:34:59 GMT
I have had my symptoms for about a year, too and at one time or another I think I have had pretty much all of them but the worst ones for me are chest pains/palpitations and the dizziness/nausea which for me both lead to anxiety and panic attacks.
I am another who has given up one the medical profession (except my counsellor). I was just made to feel like a hypochondriac and wasn't given any tests at first so I don't see the point any more
I agree that 3.5 years is a very long time to suffer with the physical's I don't know how you've coped!! No offence, but I hope I don't have them that long and I really hope yours go soon
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Post by JDM as guest on May 8, 2007 18:12:45 GMT
Hi
Yes I have been suffering for 3.5 years, there have been some periods of a couple of months where I have been ok but then relapsed.
Please be careful what you say about this on here, your reaction does not particularly offend me, but it may upset others. Many women on here have been suffering/suffered for much longer, I know that for Veritee it was the case also. When people are down highlighting this fact or drawing attention to it can make them feel paranoid. We are all suffering from this illness the duration of which does not matter as long as we support each other.
JDM
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Post by winegirl on May 8, 2007 19:37:08 GMT
Hi JDM
I would never want to offend anyone here. And should never have let my personal thoughts on the duration of this illness come into it. In retrospect, I think it is great that we can all post here and be honest about our illness, the severity, duration etc.. at least then none of us are under any illusions as to what to expect.
I was having a partticularly bad week with the physical symptoms, as I know that Sare has too, and perhaps we were just grabbing for some positive light to hang on to, but went the wrong way about it.
My job here as a trainee moderator is all about supporting the ladies (and gents) on this forum. So I know exactly what the layout of this forum is all about. I think perhaps sometimes in the darkness of it all this illness can seem so daunting that the suration, severity etc becomes too much, and this is what led me to post about my feelings on the length of suffering.
As my role on this board has changed, I will ensure that in future my own feelings and concerns with this illness are kept in check on the board, the last thing I ever wish to do is offend all the kind people who have been there for me from day one.
I hope you start feeling better soon, and that goes to Sare, too.
Take Care
Winegirl x
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Post by sare on May 8, 2007 22:20:37 GMT
I'm with Winegirl on this one.
I think what we were trying to say is that it must have been incredibly difficult to cope for that length of time with the physical symptoms, and personally I don't know if I could.
For me the physical's are the worst part of this torturous illness and the main cause of my anxiety and panic attacks.
In my naivety I had hoped that they would be gone soon, so I think that it was the shock that you had suffered for so long that made me post to this effect
Please believe that I never meant to cause offence to anyone. To the contrary I think you, and anyone else who has suffered for this long, are incredible.
I hope that we can all continue to support each other.
S xxx
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Post by Veritee on May 9, 2007 19:17:14 GMT
Dear All
I agree as it is true that many of us on here including me suffered for several years - 5 years in total, and others have had the physical side for a long time, others for much less -
and of course we all hope that our symptoms, including the physical ones go soon as they are very hard to cope with.
But I know no one on here wants to upset anyone and our only wish for all of us is to be supportive.
When you volunteer to be a moderator and take a bit of extra responsibility to respond to others on here it is a very delicate line you have to tread.
As on the one hand we accept that some suffer different aspects of PNI or indeed suffer PNI for quite a long time, but that others are better within a few months to a year.
So we want to support those through PNI however long it takes and even if it takes years - without wanting to make others who have only suffered for a shorter time and may very well be better much quicker than I and some others were - worry that they too will be ill for many years.
As the duration seems to be an individual thing so we have to try to do our best to support women whatever their situation.
We also are not experts and draw on our own experiences to support others so if we have not been suffering for as long as someone else or are recovered and had PNI for a less or longer time than others, it is sometimes hard not to bring our own issues into things.
But all anyone wants on here is to support ALL women with PNI whatever their symptoms and however long they last.
I am totally sure no one upset anyone and that you are all doing your best
Veritee
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Post by anne24 on May 13, 2007 21:04:59 GMT
Hi everyone. I read an interesting thread on post natal tinnitus. Does anyone have anymore information on this such as symptoms and treatment? Many thanks. xxx
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Post by Katy4 on May 30, 2007 21:29:23 GMT
Hello there, I am new so pleased to have found this forum. I have a 7 month boy and been ill since he was 6 weeks old. It was a traumatic pregnancy and birth (emergency C section). Before diagnosed with PNI I too had various distressing physical symptoms: blocked ears/head, loud tinnitus, dizziness, face pain/neuralgia, blurred vision, weakness down my left side. The depression came a few weeks after this and I kept telling my doc that it was the symptoms making me depressed but after various scans/blood tests they said it is more likely to be the PNI. I find it hard to believe that the 2 are linked, can PNI be that powerful? I see from this thread that many of you have had similar symptoms and I feel more hopeful that they will go when the depression lifts but scared that this illness is so intense and worry i will never get better. I was hospitalised with my PNI in Feb for many weeks, now back at home but go to a day hospital. Social services are paying for childcare, i have a supportive partner, but we are both getting tired of being on this rollacoaster ride. I am on various meds, and wondered if there was a place on this forum i could talk to someone about medication. Anyway i could write for ever! so good to know i am not the only one coping with this. Kxx
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Post by cheshire on May 30, 2007 22:32:34 GMT
Dear K, Welcome to the sitexx I know exactly what you mean about the symptoms making you feel depressed. My symptoms came before any feelings of depression too My experience is, is that PNI can be powerful in triggering a whole range of symptoms - for me it was the physical ones that got to me first... You're not alone - it's a cruel illness but it will get better - hope you find the site as useful as I dox Love and thoughts, Hopefulx
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Post by cheshire on May 30, 2007 22:34:32 GMT
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