Back on the AD

[pollyboo23]

After coming off the AD after thinking I was feeling better, I am now back on the AD's and feeling in someway's better, and glad I have gone back on them, but I am beginning to feel, although I know I have only been on them 1 - 2 months, that I will never come off them, or I am scared when I do these horrible feelings, and quesiotns I have will come back.
Must say went to Paris this weekend on the trip hubby organised for me for Christmas absolutely brilliant time, feel more refreshed, and it was sooo romantic

[Vonda]

I am glad Paris was great - one day I would love to go. I was almost weaned off the anti-d's when I started to go downhill. I am now back up to the dose I was on originally. I feel like I will never be free of them either.

Vonda

[lisa1234]

Hi there Pollyboo & Vonda,

I've posted this already somewhere but not sure where but my GP said yesterday that once you start to feel 'back to normal' then you still need to stay on the ADs for approx 3-6 months to prevent relapse. I know it seems a long time but I guess it's better to be fully recovered.

I took them before & was probably on them well over a year.

We'll all be free of them but I guess it just takes time. At least they do help to stabilise us and make us better able to cope.

Love Lisa xxx

[Ryn]

Hi Pollyboo,
I have been on anti Ds for 8 months. I started to feel better after taking them for two or three weeks. After this things gradually got better - and I am just starting to wean off of them. Though I am very afraid of a relapse and a return of my symptoms. The advice I had from my GP and CPN, as that once you start to feel better, you should stay on them for the same length of time again, however this should be at least 6 month to be confident of peventing a replase. So I guess don't rush it - a couple of months isn't long - maybe you do need longer. You will get off of them - and without a return of the horrible symptoms and thoughts - but you need to give it long enough and time. Have a chat again with your GP or Health visitor or CPN if you are worried.

You will get there - I am sure, when the time is right.
Love Kathy

[francoise]

is it because of withdrawal that women dont like taking them or do they do harm to our system as i noticed there is a lot of reluctance sometimes to take them and i was the same but i cant think of what my reasons were , i cant remember what i was thinking at the time ,
im dreading coming off mine to so ill leave it to like you said kathy and lisa , im going to take the advice for sure when the time comes, its all quite scary eh ..love fran
hey polly
glad paris was so wonderful , you deserved it hun , im so pleased for you xxxxxx

[wendabell]

pollybo,
sooooooooo happy that you and hubby had great time.its good to spend some quality time with our partners.
dont feel so bad about going on anti dees for the second time.its my second time too.just hang in and we will get through this and come off them one day when our bodys are ready,and im sure they will be one day.

[Carmen]

Hi Pollyboo
I've been on the AD's for almost 3 months and I feel the same as you - the thought of coming off them terrifies me. I think its because we hear so many people have relapsed after going off them but I'm sure if we do it in the right way at the right time everything will be OK.

For me Fran - I think the reason I didnt want to take AD's is because I felt like if I started taking them I would be admitting that I had lost control of "me" and felt like I would be weak as people I knew had gotten through PNI without them. Now I realise that all of us with PNI are no longer in control of our emotions etc anyway and for me (although I know alot of people have reasons beyond their control for not taking AD's) to suffer through this without AD's would not only make the illness last longer but would be selfish towards my children and husband. They had already lost "me" for so long and I know that if I hadnt have taken the AD's they would still be without me now.

Take Care Everyone
Love Carmen

[time]

Glad you had a nice time in Paris it sounds like a nice christmas present. I declined the referal to the gp that my hv was offering as i didn't want to go on the meds and i don't know if it was the right or wrong decision. i just could face the thought of taking meds long term and being reliant on them to make me feel normal. It was definately a hard road to travel without help and so if they are helping then you stick to it and do what you feel you need to do to get you through this. Lets just deal with getting off them when you feel you are ready. It cant be nice having to go back on them but just remember this - a happy mummy equals a happy baby. There is no point in coming off them too soon and being miserable, that wont do your baby any favours. I think I was miserable all the time and my children must have thought that I was no fun at all and to be honest they would have been right.
i hope i have not caused offence here I really didn't intend to and feel free to shout at me if I have.
Stick with it
Take care