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Post by carlie on Mar 20, 2008 18:23:55 GMT
God its been ages since i last wrote in here. Im strugglin with well im not quite sure, either a nasty virus a major blip or chronic fatigue syndrome!! Been to docs tonite as iv been ill for 2 weeks now (posted in support for pni bit) and she not sure wat it is! She has given me some strong sudafed as it may be sinusitus. But she has said to give it a week and if no improvement she is goin to refer me to see someone who knows more about chronic fatigue syndrome. My symptoms have been - severe headache, pressure on my nose, nausea on and off, dizzy, extreme tiredness-my eyes dont want to stay open,blocked nose,aching body,legs weak like jelly! So feel pants really! Luckily lo is off on hol today for 4 days with my dad so im goin to do nothin but rest and sleep to try recover- thts if it is a bug. gonna try get bk on top of writing in here as it does help. My friend has jus joined this site to, really hope she finds it as helpful as i have. what with us both havin pni sometimes we cant help each other. all for now, carlie x
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Post by katiev on Mar 20, 2008 19:28:19 GMT
Hi Carlie, I haven't had chance to read through all your posts, just the ones back at the start so I could get an idea of how you're feeling and so much of it sounded just like me. I;m so sorry you had to go through such awful things in your childhood, my LO is being hard to get to sleep so I haven't read on to see how you're therapy is working out, but I will try to find time! Sorry to hear you're feeling ill too- this week I've racked up conjuctivitis, a throat infection and an ear infection adn I feel so crap so I know how you feel. Since having LAice Ive just felt so exhausted and Ive gone down with every bug going and the rest of the time I just get sickness and diarrhoea from anxiety- I think that being depressed and exhausted can just make you feel awful awful sometimes. Just sleep sleep sleep and maybe you could try getting some more iron? I dont know if you take any, but my friend got me to start taking spatone which is just this really metallic tasting water, so it doesn't screw up your insides like some iron tablets can. I think it did give me a bit more energy but Ive been forgetting to take it so much! My LO is just nine months now, just crawling and standing and getting into everything, and I really thought I'd have my energy back by now, Ive always been fit and positive and energetic, but I still feel like right at the beginning, adn I still go back to bed at every opportunity, I hate that. I really hope you start feeling better, its horrible to feel out of control of your body, like its just letting you down when you need it the most, but you should totally pamper yourself these next four days and be good to yourself katiev xx
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Post by carlie on Mar 21, 2008 17:40:12 GMT
Hi katie, really nice of you to take an interest in my diary. Thanx for reading. I finished the theropy quite a while ago now, it was only a short term thing as it is pretty intense. Im now on gp waitin list for councelling. Sorry to hear u have been ill to, im not sure what i have got! im hoping it is a virus as im so scared tht it is m.e. Iv battled with fatigue my whole life but gp's have never really investigated it. Recently i took part in sleep study but tht was ok. So at least we know its tirdness rather thn sleepiness!!! cos tht helps lol! (not) Iron tablets, funny u should say tht, i tested border line aneamic so im jus startin iron tabs. Cant say i can tell if they workin as i came down with this whatever it is jus after startin them. So tell me a bit about you>? do u have a diary on here? im not great at readin lots it gives me headaches. When did u get pni? My little one is 15 months now, walkin, runnin and babbling!! To some extent i can lay down and rest but most of the time she brings toys and books and pokes me with them lol! Hit nail on the head wen u say about ya body lettin you down exactly how i feel. Do you have a boy or girl? Lovely to hear from you anyway x
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Post by katiev on Mar 21, 2008 20:02:19 GMT
Hey, Ive had Pni right from the start, and Ive got a 9 month old girl. Ive been doing a diary for a little while now, and I know it feels so good to get replies and feel like someones listening, that all your thoughts aren't just disappearing.. Woke up this morning with conjuctivitis in the OTHER eye this morning, so at least they match. But I look like the devil and feel pretty pants too- are you feeling any better? Hope youre managing to get some rest too. Having to dash off every few seconds because Alice is a bit restless this evening, so Im going to go! would LOVE to have a big glass of wine but I think my antibiotics might have other ideas!
katiev x
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Post by winegirl on Mar 22, 2008 9:05:41 GMT
Hi Carlie
I suffered anemia once in the past and I had to say i was totally wiped out with it. Utter exhaustion and generally feeling run down, so its interesting that you have been tested as border line aneamia.
Its funny what you say about your LO running round poking you with books etc in her hand for you as my LO does that to. As I am sat here typin on the laptop at the mo my LO is thrusting books and crayons under my nose!
Keep us updated with how you are doing Carlie
Love
WG x
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Post by carlie on Mar 23, 2008 14:18:14 GMT
Hi katie, sorry to hear about ur eye! How is it now? I hope u get better soon, it really doesnt help battling physical thigs on top of pni and they always seem ten times worse for us thn someone who is well mentally.
Winegirl yeah im only border line aneamic tho so it usually would not even be treated but was suggested i take iren pills to help with tiredness- they havent!!!
My little girl is bk 2moro and to be honest i not lookin forwrd to it at all as i know im gonna have to look after her. At the moment im findin it so hard to even get out of bed and get dressed. I jus want to hide on the sofa and not see anyone. Why is it tht wen we r low we shut out mainly the ppl tht we have been really close to? It doesnt make sense the ppl tht have helped and been there i dont want to see?! I get stroppy and irritable with them and they have done nothing wrong, i dont get it? I have two friends the 3 of us usually do things together but i dont want to see them together anymore. I find myself upset and angry if i hear they have done somethin without me which didnt bother me b4? strange!
I cant work out if i have had cfs all these years and it is tht causin my depression or if i have had depression all this years which is causin the chronic tiredness. All i do know is tht i had a year of being well, off anti d's and even then workin full time by 3pm id be unable to work id sit at comp head in hands nearly asleep. Id get home at fie and sleep for two hours then socialise and then be in bed for half ten latest. This fatigue has affected me as far back as i can remember. Iv read tht ppl die from this on tht site veritee put link up to and im now even more petrified. Is it possible to have cfs for over 10 yrs? cos tht is how long this has been a problem. Dont get me wrong there have been times where i have maintained a normalish existance but iv only ever held down a job for 3 months been to tired to carry on and left. Ppl have always considered me to be lazy and not want to work. But believe me this is far from the truth i would love nothing more than to wake up and feel refreshed and have the energy to get out there! If it wasnt for this dreaded tiredness id be out working now not stayin at home mum. I wanna b able to go college and do somethin to do with mental health as i really wanna help ppl suffering one day.
When i go to my gp i am not movin from tht chair til she looks back over my medical history and investigates this thouroughly, why should i go on suffering and worryin to the point my depression is hittin rock bottom jus be cos gp cant do her job properly. She has not once mentioned anxiety the whole time iv been ill, iv presented my own research and evidence tht suggest iv been sufferin this. It really is a joke.
I will consider chcangin gp if i get no luck, u know its jus the energy to do it and havin to explain 15 months of history all over again. iv rambled sorry x
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Post by winegirl on Mar 23, 2008 15:45:29 GMT
Hi Carlie
Just wanted to say that if you wre to be diagnosed with CFS, which is unlikely in itself, it would be unbeleivably unlikely to die from it. The chance are super super slim. I think the more you worry about this the more you are making things worse for yourself.
Just try to relax until you see the doctor this week. And remember that your symptoms reflect a number of different illnesses, not just CFS so there is no need to worry at the moment.
Take Care
WG x
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Post by carlie on May 28, 2008 13:48:34 GMT
not been here for a long time but i have now been diognosed with m.e/ cfs! Still also have depression so things r pretty damn tough! But im ploddin as best i can x
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Post by winegirl on May 28, 2008 15:15:46 GMT
Hi Carlie
Good to hear from you x Sorry about your diagnosis hun, although from what I can gather ME and CFS do often go hand in hand. I have a friend who suffers with both, and things can be hard work for her at times, but she does well alot of the time.
I guess things are pretty hard for you right now. Please know that you can come and talk to us about this anytime. We will always be here.
Hows things with LO? You managing ok?
If there is anything we can do to help just shout babes xx
Take Care
WG xx
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Post by carlie on Apr 16, 2009 19:55:39 GMT
hi winegirl, such a very long time! how are you? i still have the m.e and have a daily struggle. its very bloody hard i have to say esp with a two year old! was just reading back over some of my diary posts! cant believe how long its been. i had to disapear and concentrate on myself for a while x hope u are well x
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Post by winegirl on Apr 17, 2009 10:09:45 GMT
Hey Carlie
I have seen your pther posts, it is lovely to hear from you x
I am sorry you are still struggling. Are you getting much in the way of support??
You know you can talk to us anytime, and I hope you do, we are always here for you x
Love
WG xx
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Post by carlie on Apr 17, 2009 13:16:32 GMT
hey winegirl i have replied in the other bit! But there is nothing anyone can do for m.e only relieve symptoms with painkillers and rest! So im pretty much on my own with it. Luckily i have a very hands on partner who helps out alot with bab and house! I have to be grateful that i am able to get out and about sometimes and that im not stuck in bed like some m.e sufferers. Im just hoping to god that i dont get that bad. how r u whats new with you? xx
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Post by winegirl on Apr 18, 2009 7:22:23 GMT
I am fine thanks Carlie. Since you were last here I have quit my job and am now training as a mental health nurse - so busy busy busy this end!
I have a friend who is an ME sufferer who used to be really bad. But these dys she is at work full time, has 4 grown up kids, and does just fine. Proof that it can be manageable!
Do keep in touch Carlie, its great to hear from you xx
Love
WG xx
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