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Post by bubble212 on May 21, 2010 21:07:54 GMT
Hi all,
Kat, Thank you so much for your explanation of CBT, it has helped me to understand why I have physical symptom of dizziness as well. I asked my Husband to read it also and he said he really can understand why this illness is giving me physical symptoms now, it really made sense and seemed to make it all seem more logical, so thank you for taking the time to do that for us.
Juppster, Thankyou for answering my many crazy questions to you, it is lovely to find someone who has suffered simalar physical symptom and who has come through the other side. It is excellent that your symptoms have now almost completely gone, how long ago did you have your baby? My daughter is almost five months now and I am still having the symptoms more on than off, but my anxiety levels seem to have improved greatly since diagnosis which was only two months ago. Sorry to be nosey I just keep trying to put a time frame on this illness and I know that in itself is unrealistic as obviously it will affect each individual differently. Thankyou so much for your reassurance it is sooo appreciated and I almost breathe a sigh of relief after I read my replies on here.
Went to GP today about the possibility of needing to up my meds, she said as the dizziness only returned around a week before my period was due that she wanted to hold off for the time being as it is very normal for symptoms to reappear pre menstrually as there are so many hormones at this time and this illness is essentially caused by hormone levels. I asked her about CBT and she said this is exactly what I need but I will need to ask the counsellor about this when I finally get my appointment. I asked her if she sees many people who have PNI with physical symptoms and she said no, it is quite rare and she gave me the term to look up. She said mostly PNI is to do with being tearful and not bonding with the baby, its rare to experience physical symptoms. This worried me a little, but I think the physical side is very under publicised, and feel Doctors need to be more educated in the illness. I was seeing my Doctor twice a week at least for the first three months with symptom of dizzy, blurred vision, major anxiety and he said it was an inner ear problem, so went to ENT who said nothing wrong and I still went undiagnosed untill we saw a neurolgist privately.
My Husband is away for the first time next week since bubba was born, so am feeling quite anxious about this. Our little boy id going to stay with my Mum and me and bubba are going to stay at my good friends who lives round the corner so I will have plenty of support but still feel anxious.
Hope everyone has a lovely weekend.
Bubble xxxx
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Post by bubble212 on May 21, 2010 21:11:18 GMT
Forgot to put the name of the term the Doc gave me to look up, it was somatisation, anyone heard of this? x
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Post by juppster on May 22, 2010 7:14:48 GMT
Never heard of that one but will google it later!! What your doctor says about PNI not having physcial symptoms, in my opinion, is complete rubbish! and yes, you're right they do need educating in this illness much more. Physical symptoms were my biggest problem! In answer to your question, My little boy will be 4 in October. Please don't worry about that though! It doesn't mean by any stretch of the imagination that it will take you this long to recover! I have a history of panic attacks and depression so this all contributes to the fact that it has take me so long. The main reason for me looking into hormone treatment, another thing doctors don't seem to know about!! is that previously, before having my son when my hormones were probably at normal levels, the depression that I had responded really well to fluoxetine and i was able to come off this med after 18 months. This time around however, the ssri's haven't done much at all which leads me to think that its hormonal if you understand what Im saying??!!
With regards to your hubby going away, you are stronger than you think. I still now worry when my hubby goes away for work but know that ultimately, I will get through it and things are never as bad as you think they will be. You sound as though you have some great support around you and please take advantage of it, you are very lucky to have it.
I hope you enjoy your weekend and the sunshine, be kind to yourself xxx
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Post by Weeble on May 22, 2010 16:24:23 GMT
I agree Bubble with Jo, your GP does not know what she is talking about. My PNI Has resulted in me not crying at all - just cant.
Somatisation is the expression of mental pain as physical symptoms. In mental health problems we experience three types of physical symptoms, firstly those associated with the drugs for instance weight gain or indigestion. Then there are physical symptoms directly related to the disease for instance not eating, or for those us with anxiety racing heart, dizziness etc and then there is somatisation - this is often cultural, so for instance in women in cultures where mental illness is not accepted they often present with total body pain, in our culture if is heart break like pain.
So here is my example of these symptoms in my PNI. I get weight gain and increased hand tremor with my drugs. I had weight loss , racing heart, and dizziness as my physical symptoms and I get a ripping pain in my chest which is a somatic symptom.
We can suffer from fear of physical illness, I think everyone has a little of this, even in normal life, but in PNI and in normal depression it can be a little irrational or overwhelming. So for instance, i had a horrible spot on leg, that took lots of time to heal and I became obsessed that it might be a cancer.
Finally, I also have a habit of not believing I am really suffering the physical symptoms I am and so with my PNI I ignore illness until it stares me in the face as I think I am making it up. A little too much overcompensation I think.
I have to say my experience with my GP's was superb, but then will all missed it for weeks until it became so obvious I think my three month old son had the diagnosis.
How is your bonding with your baby going? Please dont worry if you are struggling. If its fine, congratulations.
Hope the weekend is going well. Will write about coping with OH's going away later
Kat
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Post by bubble212 on May 22, 2010 21:36:18 GMT
Hi all,
Had quite a good day today, went to the bootsale with Hubby and Kids and then saw some family, now have just got in from a psychic evening with sister in law, which was amazing! So made me forget about my ailment fro an hour and a half. The dizziness does seem to have calmed down a little today, who knows what it will be like tomorrow but today hasn't been too bad and I am thankful for that. It does seem that pre and during my period it goes mad then (hopefully!) calms down afterwards.
Juppster I really understand what you're saying about the hormone thing, it does seem if this illness is so hormone realted then why not try to rebalance them manually, haha, I know its prob not that simple but its definitly worth looking into. I am extremely blessed with family and friends and this does ease the blow of Hubby going away for work and you are right it is often the anticipation of him going that is actually worse than the event and time itself.
Kat, Thankyou for your explanation of the symptoms and where they manifest from, it does seem that the GP is not very educated in PNI, but I have come across quite a few like this to be honest! I feel I have bonded well with our daughter, it was never something that was missing, the way that the GP said its generally when mothers don't bond with their babies seeems quite short sighted given the vesatility of PNI in its symptoms.
Hope your weekends have been good so far, weather has been beautiful.
Bubble xxxx
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Post by monica on May 23, 2010 17:59:40 GMT
Hi
Do tell aboutyour psychic evening! My sister saw a psychic counsellor. Alot of advice she gave was common sense but every so often she'd come out with somethng that she couldn't possibly have known.
Gla dyour day has been good - the weather makes a huge difference to me.
TBH my physical symptoms preceded the downfall in my emotinal/mental state. At the time I wasn't partiucarly happy, struggling and exhausted then one day it all kicked off with probs with my eyes and shortly after a feelign of being permanently spaced out, which completely freaked me out. However, many of my symptoms were directly linked to the aniety and once that lifted so did they disappear.
I got pni after my second child - it started when he was 4mths old.I had bad physical and aniety symptoms for about 4 mths before I started meds, whichluckily for me worked really well. All in all I would say I had pni for 2 1/4 years but for much of that time I was well just having blips every so often which did get less intense over time.
I've since had a third child (and a late miscarriage before my youngest) and largely been pni free.
It can be a rocky road to recovery with ups and down but you will recover
Monica
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Post by Weeble on May 23, 2010 18:30:29 GMT
HI bubble
I think some GP's understanding of PNI is very simple textbook stuff, and the most common sort is crying and bonding and a recent trial showed the best treatment is eight chats with your health visitor. However, having spoken to my psychiatrist about it, it is an illness with a huge spectrum from anxiety all the way up to symptoms that resemble schizophrenia.
Do you have any other GP's at your surgery, I have found younger more recently trained GP's are much more up on this illness, it may be worth trying a different one. We have two superb GP's in our surgery, both whom I trust completely, both male and both who get this illness. So if you are not happy try another one.
How did today go? has the weather been good for you? Thanks for commenting on my streams, you have been great, please do not feel that you dont help, because you do so please feel welcome to write on my streams anytime
Look forward to hearing how today went
Kat
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Post by bubble212 on May 23, 2010 20:24:46 GMT
Had aan absolutely lovely day today, went for a long walk down the seafront with my Husband, Children, Sister and Nephew and Niece. The weather was so beautiful. Covered myself in factor 30 but still got a little burnt in places! The dizziness seemed to lift a lot more today, the symptom free days are bliss, I sometimes actually feel like my old self again its lovely. We then went to my Sisters for a BBQ. So, overall a perfect day.
Still feeling anxious about Hubby going away Tuesday night, but my friend is excited about having us stay there and arranging nice things for us to do so hopefully the time will fly by. Its funny how me and my OH are so close, I feeel like half of me is missing when he is not around, and he has always (since we met) had a job that requires plenty of nights away. Its just something that I have never got used to even before PNI they were always a trial really.
Monica, Thank you for sharing your experience with me, it really helps to know there is a light at the end of the tunnel. The psychic last night was absolutely spot on, I don't think she got one thing wrong for anybody and she was so specific with her info, I have emailed her asking for a private reading. We go most weeks but she is def one of the best I have seen. My OH doesn't believe at all and we do argue over it a lot because I am such a believer. It was since my Niece died and we went to a psychic evening and the pschic came starigght to us, we were sitting at the back of the room and said she would like to speak to us in private at the end. So we sat there for the whole hour and a half in complete anticipation, then she said I know a baby has passed recently, I couldn't believe it, I jst wanted to know she was okay and she said she was fine with our loved ones, and there would be another little girl born soon, little did we know my Sister was pregnant with my second Niece at that time. Since then I totally believe. Sorry for the long story Girls!
Kat, Thankyou, I am glad my comments are of some help, considering how much you have helped me, how has your day been, what have you been up to? have you had beautiful weather too?
Bubble xxxx
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Post by juppster on May 24, 2010 7:34:23 GMT
Oooh, the whole psychic thing fascinates me too. I would love to go and see someone i've just never been brave enough and don't know of a good one!!
It sounds as though you had a lovely day yesterday, doesn't the weather make such a difference. Which seafront were you at??
I know what you mean about feeling as though somethings missing when hubby isn't there....i totally get that feeling too. It so lovely that you are so close, especially at times like these when you really need his support.
I hope today is a good one for you hun, take care xxx
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Post by Weeble on May 25, 2010 3:49:58 GMT
Hi Bubble,
weather lovely, but a little too much as I am a giant pregnant beached whale. Still not moaning really better than rain.
Noticed you have logged on but not posted, so wondering how you are doing, still owe you a response on coping with OH being away, will do it soon
Look after yourself
kat
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Post by Weeble on May 25, 2010 16:49:10 GMT
Hoping you are still enjoying the weather and doing well with you husband being away.
Looking forward to hearing from you, look after yourself
Kat
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Post by winegirl on May 25, 2010 20:16:43 GMT
Ooooh bubble, you are talking my language! I have been to regular spiritualist meetings, met with psychics etc etc, and next month I am having my first ever 2 days away on my own to a spiritualist retreat in Glastonbury (this is the hippy coming out in me..) Lovely to find someone else who has had interesting experience with mediums too!
How have things been for you today hun??
WG x
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Post by bubble212 on May 26, 2010 9:01:42 GMT
Hi all
Sorry haven't posted for a couple of days, been a bit manic with Hubby away but he is back this evening so looking forward to seeing his beautiful face! Stayed at my good friends last night, who looked after me with dinner, dessert and drinks etc on demand so I have been treated like a Queen! bless them. Bubba was quite good through the night, up twice for milk, but straight back off afetr so a very good girl overall. Been feeling very good this week symptom wise, the day after my period finished everything seemed to feel brighter and the dizziness has lifted hugely, wonderful! Did have a bit of a horrific experience yesterday whilst in town with my sis. We were in a department store and suddenly turned around to see a woman holding up her son shouting, we realise he was choking and she was trying to thump it out, the whole store came to a standstill, first aiders came layed him down and managed to get him to gag out whatever had got lodged, and he was breathing, thank goodness! it seemed like a lifetime but must have only been about a minute. The boy was unconcious but slowly came round then an ambulance arrived and put him on some oxygen and people began to calm down. Felt so much for the Mum, I found it disturbing so gooness knows how it affected her. Was just soooo thankful he was okay and there were first aiders on hand. I was stuck to my spot in the shop untill the ambulance cam I wouldn't leave, my sister had to keep reassuring me that he was definitly breathing again and was okay, and that if he wasn't they would have been resusitating him there and then not giving him just oxygen mask and taking him off to hospital. I saw him go past on the stretcher, looking like he was recovering and I still needed my sis constant reassurance that he was okay, I prob drove her mad! It made me think how stupid it is that I don't know first aid, and how importanat it is that I go on a course and my Husband, their first aid saved his precious life. So am looking into that now, so important to know especially if you have little ones.
Hi Kat, Thank you for your continuing support, it is always appreciated, how are you? been thinking of you this week, I know it must have been quite uncomfortable in the heat being pregnant, both my children were born in January so in the summer I never really had a huge bump. whn are u due? Jo, Yes the weather has been really beneficial to my mood, its amazing how high the sun can make you feel. Its great that you are close to your OH also, mine has been a complete rock through this illness so far, and I have read many statitics stating that partner support can be vital in faster recovery from this. We are at Eastbourne seafront.
WG, Its great to find someone else who is interested in psychic readings. I think they are amazing! Your break sounds interesting, I have not heard of doing this, what will it involve, lots of readings etc? I'll be booking one in a minute, haha, obsessed with it. We are seeing Colin Fry at our local theatre next month too, so looking forward to that. The psychic who we saw on sat was called Sarah Jane Boden, and she was excellent, she does have her own web page so take a look if your interested. Hope everyone is feeling good today
Bubble xxxx
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Post by winegirl on May 26, 2010 15:03:41 GMT
Hey Bubble Glad you are feeling better!! Not sure exactly what I am having on my retreat but def booking in for Angel Therapy and will decide if anything else when i get down there. Yes I have seen Colin Fry a couple of times, and the last time he spoke to someone in the audience I knew and was sooo incredible! You will have to let me know what you think of him when you have seen him! Here is a link to the retreat I am staying at: www.daisycentres.com/Im just an old hippy at heart! So sorry to hear of your experience in the department store the other day! That sort of thing can mess with teh heads of the best of us! I witnessed a woman collapse under a car last week and as I was on scene and student nurse I had to do something. I did all the stuff I am trained to do and off she went in teh ambulance doing fine, but that night it did worry me a bit and played on my mind. These things are always a shock to the system. How has today been for you hun? WG xx
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Post by juppster on May 26, 2010 15:06:25 GMT
O poor you to witness something like that, I would have been frozen to the spot and you've really got me thinking about doing some sort of first aid course for children.
Eastbourne is lovely, i have only been once as we have friends that live there and we went for lunch at the new marina...very nice. I hope today has been a good one and you enjoy getting your hubby back again tonight xx
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